The web portal is a community effort in that most of the content is user-submitted. As many AVN patients know, AVN is a somewhat rare bone disease and thus it can be very hard to gather information about it. Along the journey of treating AVN, many patients learn invaluable lessons about treatment options or lifestyle changes that improve quality of life or help to lessen the effects of this disease. Now, experienced AVN patients can share their learned knowledge and wisdom and hopefully help to improve conditions for others.

Our site is configured to use a process where all content can be a collaboration between multiple members instead of just being written by a single contributor. As content is posted, members vote on the quality and usefulness of the content. Highest rated content will be listed at the top of navigation views and lowest rated content will fall to the bottom. Also, members may add comments with feedback or additional information about the topic. Once significant comments have been attached, a Content Administrator will then create a new revision of the content merging all available information into the content. The end result is that that readers will receive a broad multi-viewpoint perspective on topics yielding a high level of quality unique to this site.

 

AVNResources.org is a great place to learn about AVN and how to better live with the disease. However, a second goal of this corporation is that we strive to be the largest community-driven AVN research hub in the world. We accomplish this goal in several ways. First, this site offers researchers and doctors a way to directly interact with AVN patients and track their progress over time by publishing on-line questionnaires and polls. Due to the nature of our technical framework, all collected patient information is kept completely private and anonymous. However, internally, the site is able to relate questionnaires and polls collected over time back to the same individual.

 

Patients benefit from this site's research resource as well because the research participation features of this site allow patients a vehicle to actively “do something to help.” By actively participating in these research projects, many patients feel a little less like passive victims and a little more in control of their futures. Patients here are actively helping the medical community to better understand the disease and how to better treat patients. Most of all, the hope is that information collected here might even lead a step closer to a cure.

 

If you have any further questions or would like more information, please feel free to Contact Us.