| Research Projects |
General Overview
AVNResources.org is a great place to learn about AVN and how to better live with the disease. However, we also strive to be the largest community-driven AVN research hub in the world. We accomplish this goal in several ways. First, this site offers researchers and doctors a way to directly interact with AVN patients and track their progress over time by publishing on-line questionnaires and polls. Due to the nature of our technical framework, all collected patient information is kept completely private and anonymous. However, internally, the site is able to relate questionnaires and polls collected over time back to the same individual.
Patients benefit from this site's research resource as well because the research participation features of this site allow patients a vehicle to actively “do something to help”. By actively participating in these research projects, many patients feel a little less like just passive victims and a little more in control of the future. Patients here are actively helping the medical community to better understand the disease and how to better treat patients. Most of all, the hope is that information collected here might even lead a step closer to a cure.
Click one of the sub-menus under "Research Projects" to view the available options.
Research Guidelines
If you are a doctor, researcher, or medical company actively involved in the study of Avascular Necrosis and you would like more information about conducting research via questionnaires and polls, please contact the site administrators at:
Privacy Guidelines
All patient information on this site is kept completely anonymous and private. No patient name, account name, or any other personally identifiable information is ever distributed to any person or company. All data feeds disseminated contain randomly generated case numbers to link case data collected.
Data Feeds
Data feeds of the case information collected on this site are published once a month and are made freely available to any organization that demonstrates a valid use of the data.
Fees
This site and all its data outputs are completely free. There is no fee to participate as a patient or as a researcher publishing content.


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